Hidden Pain

4 09 2014

Invisible.Illness.pic

September 8-14, 2014 will be the 12th annual Invisible Illness Awareness Week.

On their website you can read about the history of the Invisible Illness Awareness Week. Here’s a little peek:

“Invisible Illness Awareness Week was started in 2002 when Lisa Copen, founder of RestMinistries.com, saw so many people who felt misunderstood by everyone. Familiar with the book “Sick and Tired of Feeling Sick and Tired,”* Lisa understood what the authors of the book called an “invisible chronic illness” or ICI.”

Watch their YouTube video to get the feel of the campaign to raise awareness.

https://www.youtube.com/watch?v=H18QKmYxaKA

The theme for this year is JUST ONE. For me the response to that theme is ‘Just one desire.’

I created an item as my gift to fellow individuals who have an invisible illness. Click on the link below to view photographs I took. Many have scripture I added. All pictures can be downloaded and saved.

http://secure.smilebox.com/ecom/openTheBox?sendevent=4e4445784e6a6b314d4442384d5467334e7a55774e44413d0d0a&sb=1

Below you find out how my item fits into the JUST ONE campaign.

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Just One Desire

It seems like a simple question to answer … until you’ve been diagnosed with an invisible illness.

You appear to be fine so others casually ask, “What do you do?”

Multiple sclerosis (MS) has chiseled away at my ability to work. But there’s one thing my disability can’t snatch from me: my desire—my desire to have a purpose. I’m guessing that’s true for most people. We want to fit in, contribute, and have a life with meaning. And we can.

When I was first diagnosed, I wanted to make Christmas gifts for family and friends. Limited stamina prevented me from continuing my decades-old tradition of baking cookies. So I switched to calendars made out of photographs I’d taken.

Invisible symptoms of pain and fatigue don’t interfere with photo shoots. I ride a scooter, shoot indoors, and even snap pics from a car. While taking pictures, I’m rarely aware of my pain.

Though my pain is constant, it’s minimal. When countless lesions on my brain made it increasingly more difficult to multitask or concentrate for long periods of time I wondered what would become of me.

Who am I if I can’t think?

God revealed His plan for my life with an invisible illness. He’s given me opportunities to teach part-time, write, and speak. My passion is to support others who have hidden pain. Like fellow moms raising children with mental illness (MI). Or victims of bullying and the bystanders who witness aggression.

Through my blog, I connect with mothers facing similar trials. Writing has also helped me equip bystanders of bullying. The central character in the picture book I wrote sees others differently. Beth has heart eyes.

Don’t you wish others could see you with heart eyes? God does. He knows your struggles and desires.

“But the Lord said to Samuel, ‘Do not consider his appearance or his height, for I have rejected him. The Lord does not look at the things people look at. People look at the outward appearance, but the Lord looks at the heart (1 Samuel 16:7).’”

 

 





Afraid of Christmas?

4 12 2012
Christmas Morning 1963

Christmas Morning 1963

Maybe you have a love-hate relationship with Christmas. There are things you absolutely love about the holiday, and things you hate.

Love reflecting on cherished childhood memories. But, hate the commercialism of Christ’s birthday.

Love worshipping the Lord on Christmas Eve. But, hate being alone.

Recently I wrote a devotional about fears and stress at Christmas.

By the way, in the picture above, the girl coming down the steps Christmas morning is me…That’s right—me with the uncombed hair. If you’re not afraid of Christmas, then maybe that bedhead hair scared you!

You can find that devotional on Rest Ministries website. It’s entitled “Fears and Stress at Christmas When Chronically Ill” and was posted December 3rd.

Visit Chronic Illness Pain Daily Devotionals (Rest Ministries) to read that devotional (and find more devotionals written by other people with chronic pain or illness).